Illness name: huntingtons disease
Description:
Huntington's disease is a condition that stops parts of the brain working properly over time. It's passed on (inherited) from a person's parents.
It gets gradually worse over time and is usually fatal after a period of up to 20 years.
The symptoms usually start at 30 to 50 years of age, but can begin much earlier or later.
Symptoms of Huntington's disease can include:
Full-time nursing care is needed in the later stages of the condition.
Read more about the
symptoms of Huntington's disease
.
Huntington's disease is caused by a faulty gene that results in parts of the brain becoming gradually damaged over time.
You're usually only at risk of developing it if one of your parents has or had it. Both men and women can get it.
If a parent has the Huntington's disease gene, there's a:
Very occasionally, it's possible to develop Huntington's disease without having a history of it in your family. But this is usually just because one of your parents was never diagnosed with it.
Speak to your GP for advice if:
Your GP may refer you to a specialist for
tests to check for Huntington's disease
.
There's currently no cure for Huntington's disease or any way to stop it getting worse.
But treatment and support can help reduce some of the problems it causes, such as:
Read more about
treatment and support for Huntington's disease
.
Living with Huntington's disease can be very distressing and frustrating for the person with the condition, as well as their loved ones and carers.
You may find The Huntington's Disease Association a useful source of information and support.
They offer:
Watch this video about Huntington's disease which offers advice and discusses the decision to get tested.
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Page last reviewed: 29 March 2021
Overview
-
Huntington's disease
Symptoms
How it's inherited
When to get medical advice
Treatment and support
Further information and advice
Video: Huntington's disease
Media review due: 1 April 2024
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Next review due: 29 March 2024